Endometrial cancer is a common gynecologic cancer that can bring about many questions, challenges, and emotions. We’re here to help you find information, support, and practical resources from diagnosis through treatment and beyond. You’ll find educational guides, webinars, support groups, blogs, and more to help you feel more informed and supported throughout your journey.
Our clinical team of trained mental health professionals and genetic counselors is available to speak with you privately at any point in your cancer journey. We offer confidential psychosocial support and guidance to help individuals and families better understand their unique circumstances, cope with challenges, and make informed decisions about care.
You can also speak with our clinical team to learn more about and request a complimentary Treatment Care Kit. This kit was thoughtfully curated with practical items and supportive resources to help ease treatment side effects and provide comfort throughout your endometrial cancer journey. To learn more about the Treatment Care Kit or speak with our clinical team, please use the Contact Us button below.
Endometrial Cancer Support & Resources:
- CancerCare (Uterine/Endometrial Fund) – Offers specific co-pay and treatment financial assistance plus oncology social worker support for people with uterine/endometrial cancer.
- Ovarian Cancer Research Alliance- Provides detailed endometrial cancer information plus support programs including peer mentoring (Woman to Woman), virtual support sessions, and an online patient community to connect with others facing endometrial/uterine cancer.
- Endometrial Cancer Action Network for African-Americans (ECANA) – Provides endometrial cancer specific education, survivor support, and resource navigation, particularly serving Black women.
- Foundation for Women’s Cancer – Offers endometrial cancer specific education, policy advocacy, and guidance on navigating care and coverage.
- SHARE Cancer Support (Uterine Cancer Support) – Provides free uterine/endometrial cancer specific peer and professional support including online support groups, survivor-led helplines, educational webinars, patient navigation, and community resources to help people understand and cope with their diagnosis and treatment.
- NeedyMeds – A free resource where you can search for drug assistance programs, diagnosis‑based support, and prescription discount options to help reduce medication and treatment costs for endometrial cancer.
Printable Guides:
- Cancer Support Community– A comprehensive patient guide to help you navigate discussions with your healthcare team, understand your diagnosis, and learn more about your care.
- Foundation for Women’s Cancer– A guide created to help you learn about who will be on your healthcare team after diagnosis, understand your treatment options, highlight questions to ask, and leave you more informed and confident in your care.
Support Groups:
- SHARE Cancer Support (Uterine Cancer Program) – Provides uterine/endometrial cancer–specific peer support groups, helplines, and educational programs for patients and survivors.
- Ovarian Cancer Research Alliance – Weekly virtual support sessions focused on endometrial cancer topics led by oncology social workers, plus opportunities to connect with others in the gynecologic cancer community.
Webinars:
- Sharsheret– Cancer Connections: Understanding Risk, Treatment and Women’s Gynecologic Health.
- Cancer Support Community– Beyond the Diagnosis: Navigating Life with Endometrial Cancer
Blogs:
Frequently Asked Questions:
1. What is endometrial cancer?
Endometrial cancer is a type of cancer that starts in the lining of the uterus (endometrium). Endometrial cancer is a subset of uterine cancer, and may sometimes be called uterine cancer.
2. What are some of the signs and symptoms of endometrial cancer?
The most common symptom is abnormal vaginal bleeding or spotting. This can include postmenopausal bleeding, bleeding between periods or periods that are heavier or longer than usual, or other unusual vaginal discharge. Other symptoms include pelvic or abdominal pain, pressure or bloating or unexplained weight loss.
3. Are there genetic factors that link endometrial cancer to breast and ovarian cancer?
Endometrial cancer can sometimes be caused by a hereditary cancer syndrome. This means that a person inherited a harmful genetic change that increases their risk for certain cancers. The hereditary condition most associated with endometrial cancer is Lynch syndrome (also called hereditary nonpolyposis colorectal cancer). Harmful gene changes in the MLH1, MSH2, MSH6, PMS2, and EPCAM genes cause Lynch syndrome. Cancer risks associated with Lynch syndrome include colorectal cancer, endometrial cancer, ovarian cancer, stomach cancer and others.
Click here to learn more about the genes listed and their connection to Lynch syndrome and endometrial cancer.
There are other, more rare, hereditary cancer syndromes that increase risk for endometrial/uterine cancer, breast cancer and/or ovarian cancer. These include Li-Fraumeni syndrome, PTEN/Cowden syndrome, and others.
There has been limited data suggesting there may be a slightly increased risk of serous uterine cancer for those diagnosed with hereditary breast and ovarian cancer syndrome (caused by changes in the BRCA1/2 genes).
4. How is endometrial cancer usually diagnosed?
Endometrial cancer is usually diagnosed with a biopsy of the endometrium.
5. Could endometrial cancer affect fertility, and what should I know?
Yes, endometrial cancer can affect fertility from either the disease itself or from the treatments used. Endometrial cancer begins in the uterine lining. Since the uterus is the pelvic organ where a pregnancy develops, an embryo may not implant or be able to grow. Additionally, the standard treatment for endometrial cancer is a hysterectomy. This is the surgical removal of the uterus, often along with the ovaries and fallopian tubes.
Fertility preservation treatments may be possible for those diagnosed with very early stage, low grade cancers. This is usually followed by hysterectomy once childbearing is complete.
Some women may choose to freeze their eggs before beginning treatment if a hysterectomy is necessary. When they are ready to have a child, they may use a surrogate to carry any embryos created from the eggs they had frozen.
Sources include:
National Comprehensive Cancer Network (NCCN). Genetic/Familial High-Risk Assessment: Breast, Ovarian, and Pancreatic.
https://www.nccn.org/professionals/physician_gls/pdf/genetics_ceg.pdf
https://pmc.ncbi.nlm.nih.gov/articles/PMC7221125/
FAQ created and reviewed by Sharsheret genetic counselors.
The Maidenbaum Endometrial Cancer program is made possible by:
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With additional support from:
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